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Improving Oral Health Care for Individuals with Intellectual and Developmental Disabilities

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Jenna Shields holds up one of the dental kits being given out.

Accessing effective oral hygiene tools can be a significant challenge for individuals with intellectual and developmental disabilities (IDDs) and their caregivers. Recognizing this gap, a research team at IWK Health conducted a study to understand what oral hygiene aids dental professionals recommend for patients with IDDs. The results have now been translated into action—creating specialized oral hygiene kits to help families overcome these challenges.

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Jenna Shields and Kaia Regan hold up kits

Jenna Shields, Dental Clinic Ward Clerk and Kaia Regan, Registered Dental Assistant, photos by Ryan Wilson IWK

A common concern among parents of children with IDDs is how to effectively brush their child’s teeth. Sensory sensitivities, oral aversions, and difficulties with manual dexterity make daily oral care challenging. While dental professionals often provide advice, there has been little research to guide them in recommending specific tools.

To address this, a survey was conducted among dental experts who regularly treat patients with IDDs. The goal was to identify the best tools to support families in maintaining oral health at home.

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A dental kit which includes two-sided toothbrush, paste, timer and flossers

What’s in the Kits?

Thanks to funding from the Thistledown Foundation, the results have led to the creation of specialized oral hygiene kits which are now available to families. These kits are customized based on the patient's age and needs and may include:

  • A regular toothbrush or a three-sided toothbrush
  • Fluoridated toothpaste options, including high-fluoride or non-flavored versions
  • Floss picks or Gum Chucks (floss with large handles for easier use)
  • A two-minute toothbrush timer
  • Fun stickers for encouragement
  • An educational oral health brochure

Many of these items are expensive and difficult to find in stores, making the kits a valuable resource for families in need.

A Win for Families and Dental Clinics

By providing access to these specialized products, families can implement better oral care routines at home. For dental clinics, this initiative ensures that patients have access to the aids they need to maintain oral health between visits, improving overall care outcomes.

This initiative was led by Dr. Jenna McNutt, a former Dalhousie Dentistry student and Dr. Tracy Doyle, staff pediatric dentist at IWK Health. Thanks to Lindsay Wallace, Jenna Shields and Jillian Estey for putting the project into action. The team hopes to continue expanding access to these vital resources and raise awareness about the unique oral health challenges faced by individuals with IDDs.